Public involvement with children and young people – some reflections from INVOLVE 2014

I’m still buzzing with ideas after last week’s INVOLVE conference. It was great to launch the social media guidance, which generated some really interesting conversations  – watch out for a tweet chat in January, further details to be confirmed. But the focus of this post is on the involvement of children and young people in research (although of course social media does come into this), and I wanted to follow up my last post on this topic with a conference-related update.

I was part of a great session on children and young people’s involvement which was chaired by Erin Walker, who supports the CRN CC Children Specialty’s Young Person’s Advisory Group in London. Fellow presenters included Hayley Reed talking about the exciting work DECIPHer are doing with their ALPHA young people’s research advisory group. Having had links with ALPHA in the past it’s great to see them going from strength to strength and developing some really innovative ways of working with researchers. The final presentation was by Valerie Dunn on ‘engaging young people in care through animation’. More information on the fantastic films she made with young people can be found here.

Both presentations linked really well with the one I co-presented on ‘involving children and young people in research: the usual suspects’. My co-presenters were Lorna Templeton and S, a young advisor to the project. Our presentation (below) focused on our attempts to involve young people in the ‘Youth Social Behaviour and Network Therapy’ (YSBNT) Study*, and explored what we are learning about involving a ‘seldom heard’ group of young people  in research:

A few reflections:

It was great to meet so many people with an interest in children and young people’s involvement in research, and to feel that the interest in this area is growing. A few people commented on the lack of children and young people at the conference (a recurring theme), and the need for a specific stream at the conference and/or a dedicated national event on this topic. This has come up in the past (for example here) and is certainly something I’ll discuss further with the INVOLVE advisory group.

  • Any other thoughts from people who attended the conference?
  • Are others also interested in a community of practice on children and young people’s involvement in research?

*The Y-SBNT project is funded by the National Institute for Health Research HTA programme (project number 11/60/01). The views and opinions expressed in this post are those of the author and do not necessarily reflect those of the HTA, NIHR, NHS or the Department of Health.