Following the events organised by People and Research West of England on involving children and young people in health and social care research, I’ve created a new page with information and resources as it seems to be an area in which there is growing interest. One of the issues emerging in my recent conversations on this subject has been the relative lack of published information and ‘evidence’ (in the researcher sense of peer-reviewed and critically reflective accounts) on public involvement with children and young people. So hopefully this page will be a start and additions and comments are of course very welcome!
I also recently gave a presentation a couple of weeks ago at INVOLVE‘s annual symposium for advisory group members, along with Jenny Preston, from the NIHR Clinical Research Network (Children). Jenny and I were invited to start a discussion on ‘involving and engaging young people in research’ and my presentation gave an overview of some of the issues, opportunities and challenges from my experience and discussions at the PRWE fora:
Jenny then followed with a presentation she and colleagues at the NIHR Clinical Research Network (formerly Medicines for Children Research Network) are doing with their young people’s advisory groups. This included highlighting plans to continue the Generation R work they started last year (see films and report).